PLEASE NOTE: Due to the volume of inquiries I receive requesting help for Lyme Disease, I am unable to reply to all blog comments and emails. If you are interested in scheduling a phone or Skype consultation with me on treating Lyme Disease naturally, please contact me directly by email or phone.
So far, I’ve had Lyme Disease and Bartonella in complete remission for 4 years, and that includes having spent 6-8 months minimum getting seriously exposed to carbon monoxide. If one can get hardcore chronic CO poisoning and still not relapse, I think it’s safe to say their treatment system was damn successful. In total, I dealt with Lyme for about 2 1/2 years before getting it into remission, which is shorter than many people out there, but still long enough for it to have taken over my body on a cellular level. At my worst, I had fibromyalgia so bad that my legs would not bend enough for me to walk.
I have a document that I’ve sent to many people with everything I did to get well, and decided it was time to post it here for the interwebs at large to have access to. Some things are more personal than I’d really care to share publicly, but I am doing so for the sake of hoping to help others. Note that this is just what worked for ME, and is not medical advice from a professional. I’m just a health foodie chef girl who manages to survive an array of wacky illnesses and wants to share whatever possible to help others recover too.
Lyme Success- What I Did:
-The #1 thing that killed the Lyme was a GB 4000 rife machine. It costs about $2500, my parents bought it for me. Basically, it is a
radio frequency machine that bursts both the lyme and the cysts the disease creates inside your cells to protect itself from being killed.
(Antibiotics make the lyme build stronger and stronger cyst protections, which is why people plateau so quickly on them.) I also
found useful the rife’s programs/settings for pain, detox, etc. A cheaper option is a doug coil, which can be homemade, or a Hulda Clark Zapper. Though the cost of the GB 4000 is high, it is cheaper than antibiotics and all their supplies, and much more effective.
-Therapy helped a lot with the entire process. Lyme eats up your brain and creates whacked out, f-ed up emotional problems; I would sit in the closet in the dark and cry for hours, with no cause or understanding of why. I’d always been pretty stable before, that
wasn’t normal for me at all and was very scary. I also had a LOT of awful suicidal thoughts that came as soon as any conflict arose in
life. I just couldn’t deal with anything without feeling overwhelmed and like I wanted to die. Therapy not only got rid of all that, it
gave me hope that I would get better, which in turn, I did. I did DNMS, developmental needs meeting strategy, along with EMDR, eye movement desensitization reprocessing. My therapist taught me how to be sick, and then, how to be a better version of myself when I got well.
-Supplements are VITAL. I took daily all of the following: sarsaparilla root, pau d’arco, chlorella, milk thistle, probiotics, proteolytic enzymes, zeolite, krill oil, olive leaf, magnesium, immunity mushroom blend, ubiquinol, and a multiple with high amounts of b/c/d etc. plus an antioxidant blend.
-Acupuncture was the thing that actually catapulted me into wellness. I had already killed the lyme, but was so overrun with toxins I couldn’t get out that I hadn’t yet felt any recovery. Acupuncture, specifically the mobile cupping, mobilized the toxins out, and I began recovering the day in late December 2010 that I first had it done.
-Coffee enemas. I know, major wtf. But seriously, they helped a lot. There is pretty much NO way you can get out all the toxins building up from killing lyme without drastic actions. Google has all the info on how the caffeine stimulates your liver to dump the toxins out. I did these twice a week, minimum.
-Epsom salt baths with hydrogen peroxide, after every rife treatment. They help pull the toxins out through your skin.
-Diet. I’ve always been an extreme health foodie, but I had to go as far as cutting out all grains, fruit, etc. for awhile. Lyme makes bad
stuff grow in your intestines, and both ibs and candida are very common in Lyme patients, so you can’t feed the yeast or it makes the
Lyme stronger by creating a more acidic internal environment. Incidentally, I had horrific ibs before being diagnosed and fixed both
that and the major candida symptoms with a product called Intestinew by Renew Life. Organic, unprocessed food is key.
-Kombucha. I drank 16-32 oz a day, which is pricey, but it’s the only thing that ever helped me palpably feel better, plus it’s full of
-E3 Live: again, pricey. It’s a good way to get high potency greens, but I didn’t feel it really helped until I was already on the way to
-For insomnia, they gave me ketamine, to which I said no way. I managed to sleep with large doses of amantilla, which is valerian root
extract, and a chinese herbal complex called an shui wan.
-For pain, a topical cream called Thermoderm provided substantial relief. It’s cheap. Also, pot helped with pain, specifically pot with
a low thc to high cannabanoid ratio.
As for what to avoid:
-Lyme disease forums on which everyone is still ill. Majorly depressing.
-Antibiotics if possible, which only have a 65% recovery rate and a 35% relapse rate anyway and will likely ruin one’s digestive system indefinitely. They are the standard course of treatment.
-Cowden Protocol, or herbs from it. The herx (die off reaction) is the worst ever… like bugs crawling all over you, bad drug trip, tear
your eyes out, bad. This includes samento, cumanda, and the other herbal antimicrobials. The herbs with it like burbur, pinella,
magnesium malate, and serrapeptase are fine.
The Number One Lesson That Helped Me:
In my interview with the fabulous Blythe of Blythe Raw Live, I detailed my process with Lyme, as well as the statement from my therapist that was utterly transformational to my healing process. The Lyme clip is only about five minutes total and has some good info, but if you don’t want to watch it all, fast forward to about four minutes in for that part. I think it’s the most powerful when spoken. You can watch it here.
Again, I’m no professional! I grew up in a very holistic household that taught me to always choose natural remedies before Western Medicine when possible. In my opinion and experience, that is the smartest, most productive, and best way to go for overall health.
After all the lovely responses I received from my blog on natural products I’ve used to help with energy, I decided to write one about what helped me with two of the worst aspects of having Chronic Lyme Disease: fibromyalgia (aka, horrible pain everywhere all the time for no apparent reason), and insomnia. I only have a couple products that worked for each, but they worked very well.
My insomnia began pretty quickly after I started treating Lyme with the Rife machine. I would go to bed on nights I used it, and just not fall asleep. By five am, I’d be in tears, and I would either not fall asleep at all or finally fall asleep in late morning, only to sleep for a couple hours. Since I used the machine 1-2x a week, the insomnia would diminish as the days passed between treatments, then occur again as soon as I used the machine. Within a few weeks, it became nightly, and torturous. My LLMD prescribed me ketamine, which I refused to take. All I could think was, “K-Hole,” and, “Why the hell would I want to be on the most popular date rape drugs of the 90s?” I’d had a disastrous experience with Ambien in my early 20s and didn’t want to go near that, or any other pharmaceutical. I tried an array of supplements until I found a combo that worked:
An Shui Wan by Plum Flower Brand, approximately $15 for 220 pills: I had taken this after the Ambien disaster in my 20s, and it cured the insomnia I had in college. Not only does it put you to sleep, but it also regulates your circadian rhythms. This teaches your body to get tired at the same time every night, which is very helpful. In the past, An Shui Wan alone had knocked me out. They say to take 2-8 tiny tea pills, and I’d have success with a dosage of six or so. With the Lyme, though, I needed much more. I took about 15 An Shui Wan tea pills a night, along with:
Amantilla Extract by NutraMedix, approximately $20 for 1 oz: This alone didn’t put me to sleep, but combined with An Shui Wan, I never needed to use a pharmaceutical sleep aid. The dosage is 15-20 drops, and I generally took 30. Granted, this is twice the recommended dosage for both herbs, but given that they are natural and safe, I think doubling up is far, far less harmful than taking actual drugs. Between the two, I slept full nights the entire time I treated the Lyme. As I got better, sleep came more easily, and I backed off each of these until I slept unaided. There were no side effects at all in coming off of them.
One other thing that helped with sleep also helped with pain, so it makes a good segue. I imagine most people dealing with chronic illness or fibromyalgia are likely already familiar, but just in case you’re not:
Ever since Kramer on Seinfeld referred to taking a bath as, “steeping in a tepid pool of your own filth,” I’ve had an aversion to them. But man, epsom salt baths are sooooo important for Lyme treatment. I took one after every time I used the Rife, and it made the detox process much more effective. It also made me sleepy, and made me feel a bit less like I was made of lead. Be careful, of course, when using these if you have a serious illness, because they say it can knock you out or make you detox too fast. I never had any negative results myself. Espom salts are available for super cheap at any grocery or drug store, and it’s suggested that you work your way up to the full 2 cups slowly.
When I started treatment, my first route was the Cowden Condensed Protocol. The only thing I have to say about that is, f!ck the Cowden Protocol. It did indeed start killing the Lyme, but no matter how much of their detox herbs I took, or anything else I did for detox, I could not get the toxins out. Cowden took me from fully mobile and normal to unable to walk in less than two months. Not only was I in constant, unexplainable agony, my joints wouldn’t bend. Trying to walk, I looked like I was 80 years old. My knees simply refused to bend AT ALL, I couldn’t even sit in a chair. I couldn’t lift my arm high enough over my head to get a glass for water, let alone bear the weight of a full glass in my hands. It was such a nightmare. We went to visit my parents (I got a wheelchair in the airport, which was a new low in life, but for the record, zooms you right on through security!), and my mother nearly died when she looked at me. My sister had just gotten a Rife machine because my initial diagnosis had prompted her and her husband to get tested– both were positive– and while there, I stopped taking the Cowden products and used her machine’s detox settings. When we left a few days later, I was again able to walk. My parents then got me a GB 4000 machine, which is what she had, and I used it for three months to kill the Lyme dead.
I cannot say enough good things about this machine. Yes, it is a high initial investment (nearly $2500), but how much money does the average Lymie spend on antibiotics that have a 66% cure rate with a 35% relapse rate? Lots more, for sure. The machine can be used for everything from candida to hiccups, and I still bust it out on occasion when new health problems arise or return. It has pain settings/programs on it, and you can change the set up so that you put the pads on your hurt parts and actually feel the muscle contractions and relaxing relief. It helped immensely for pain by using the pain programs, and helped a lot indirectly via the detox settings/programs. I ran detox and pain nearly all days in between treatments. While I was pretty laid up and non-functional during these months, I was at least not wanting to die like when I couldn’t move at all.
Thermoderm cream, approximately $15 for a small bottle: slather your body in this, be prepared for about half an hour of horrific heat and burning, then settle into nearly 12 hours of SERIOUS pain relief. I LOVE this cream and it actually made me feel like I could move my limbs and muscles. With it, as I began to get better I was able to slowly start stretching again. I had gone from being someone who could touch her toes/put her hands flat on the ground, to someone who couldn’t even bend to the knee. Thermoderm loosened everything inside up, numbed the pain, warmed my muscles, and gave me a much needed mental break from thinking, “OW!” nonstop.
Ganja, mon: I’d been a TOTAL pothead for about 15 years before Lyme. When I first got sick and didn’t know what was wrong, I stopped enjoying pot and had to stop smoking it. I thought I’d grown up, and gave myself a pat on the back for finally achieving Big Girl status. What had actually happened was that Lyme f-ed up my brain and changed its chemistry dramatically, so I didn’t respond to anything the way I had before. I stayed off the crazy weed for about two years, until eventually after a lot of suggestions I tried it for the fibro pain. At first, I got a sativa from a friend, which is what I had smoked before, made it into butter, ate way too much, and spent about four hours laughing and crying hysterically. Not fun. I went ahead and got a medical marijuana card, then went to a club to ask them what they recommended specifically for pain. I alternated between two strains of indica that made me feel a lot less awful: Blue Moonshine (pictured left) and Iron Maiden (right). I smoked a very, very small amount- eating it just didn’t work for me for some reason- on a daily basis until I got better, then kept it up on occasion when it sounded like fun. Both of these strains made me feel relaxed physically but did not make me feel like I was in a mental state of panicked impending doom, like sativas did.
Last, but just as important as the GB 4000 Rife machine, acupuncture with mobile cupping: I didn’t get two Yelp “review of the day”s on this place for nothing! Acupuncture had helped me with a lot of health problems in the past, but what Antonio Whiteley of Body and Soul Acupuncture did with mobile cupping helped get me out of pain quickly, as well as catapulted me into wellness. As of when I went to him, I didn’t know it but the Lyme was basically all dead already from the Rife; I was just still having symptoms because I couldn’t get all the toxins out. The first visit I went, he did a back shu treatment and then mobile cupping all over my back afterward. Somehow, this jumpstarted my entire body. Within the first week of treatment, I could stretch again (thanks also to the Thermoderm), and within a few weeks, I was seriously doing kickboxing class videos at home. Acupuncture/cupping mobilized the toxins right out of my body, and that is when I got well. The whole recovery process, after years of illness, took less than a month, and I have not had fibro pain or insomnia since. It has been over a year since then, and I still see Antonio regularly. In the same sense that I still take supplements to keep the Lyme under control, I utilize acupuncture as a proven way to keep my body properly detoxifying.
If you are suffering from fibro or insomnia, or any other related health condition, the above options will be much easier on your system, and have far fewer negative effects (if any), than the pharmaceuticals doctors prescribe. Before you begin something that may do you further harm, please consider one of these natural alternatives.